Infection Subjection & Urgency IGNORED, Once More...
One More Time NHS "professionals" have shown Zero Concern, Urgency, or Alarm about something that's actually Very Serious, in my life and in others'... and it's getting Very Concerning & Disturbing...
The Worse I am, The More Disabled I Get — by looking at me and regarding my actual non-abilities getting worse. The More ILL I get, the more I get Dismissed, the more Nonchalant they are, the
More & More I’m absolutely being Battered by having to go out and DO things for my “health” — and all it does is worsen it considerably.
Even something as simple as the GP INSISTING, ENFORCING the District Nurses to attend for a simple swab — one that my mother could do in her sleep, being a 50-year veteran Retired RN… i.e. with far more experience than two or three of the district nurses that usually attend — because I have to KILL Myself going out my room, down the stairs and into the living room, WAIT for them to turn up, transfer to and lie on a couch that hurts (well… everything hurts that isn’t the floor, my bed, or my wheelchair) for the swab, then get self sorted, transfer back to wheelchair,
I cannot even TELL YOU how PAINFUL, EXHAUSTING, OVERWHELMING, & PHYSICALLY DEGRADING TO MY CONDITION that even DOING JUST THAT IS.
I also have to deal with my Autism and Agoraphobia AS WELL, which also means it’s SUPER MEGA Exhausting for that— On Top Of Dealing With The Physical Side, as above...
I’ve also been pushed from PILLAR TO POST by the Health & Social Care System This ENTIRE YEAR… But HUGELY in the last two or three months — Mainly by the NHS, but with Social Care, as well [and for No Good Reason]… Forced into demanded & non-negotiated pre-booked appointments, all over EVERYWHERE.
To actually try and help, we even had to go to & pay for a hotel — including a 2nd room for my mother to drive & accompany — for a few days recently, to cover TWO appointments in two different hospitals in the same city… AND were FAR too far to make in a day and back (that one time we did try went horribly wrong, and… NEVER again[!])… and they’re always at DIFFICULT Times. And it’s not like THEY are going to be compensating the hotel’s atrocious costs, either, so it’s REALLY NOT very OK for them to continue to enforce “Morning Only” appointments, if they’re not also going to Pay For The Hotel I HAVE to have, lest I either don’t make it, or I’m VERY ill for Weeks or even Months afterwards…
And those appointments have been pushed back SO HARD for MONTHS already; enough, to the point, where it’s “take the next one or get out”. Not to mention, WHAT happens in the meantime, if you push back IMPORTANT tests & consults SIX Months or more to your health in THAT sense, too??
… Seriously, WHY does EVERY Clinic ONLY DO “Morning Appointments”? Are they afraid of the Afternoon or Evening? Are they all Vampires??…
It would mean we could make it to FAR MORE appointments without DECIMATING me, if they were ALL after 2pm — because MEDS do NOT Care about such things when it comes to how long it takes to KICK IN. But then, if they ALSO had afternoon appointments, these places… Wouldn’t they also see Twice As Many Patients??
What ALL This HAS done to my health is not just WRECK it… It’s UTTERLY RUINED It.
And it’s WORSE than that, because I’m ALSO doing ALL of That, On Top Of Having an Unmovable Post-Op Infection. For TWO Months… and Counting.
Tell me… When was I supposed to Rest Up & Recuperate after I got it, with UNCOUNTABLE different types of Appointments to make in just these past Two Months Alone?? Especially with either “We can’t wait till Next Year” or “Well, it might be six months or more before we can offer you another one” as the answer to the word NO….?
IS it any wonder, then, that Post Op Infection ISN’T Going?
The things IS… The GPs aren’t really Doing Anything to actually Help, either. They’re SO Lacksidaisical, it’s… Disturbing.
First, it was a big push with double-dose Flucloxacillin. Then Maxitrol Ointment. Then Doxycycline. Then MORE Doxycycline. Now… Flucloxacillin — at HALF that initial Dose… Which makes absolutely ZERO Sense at ALL… WHASOEVER.
Oh, and THEN there’s the pointless District Nurse Swab, which makes me EVEN. MORE. ILL. Pointless because after that? It will obviously STILL be there…??!
If A HUGE Double-Dose DID NOT kill it, and the others didn’t touch it… Well. I’m NOT Seeing a piddly dose HALF of that initial one would be doing… um, Anything?
Except help give me MRSA.
…. And SEPSIS at this rate — since nothing is actually STOPPING IT.
There’s been NO Other Input. It’s a Cycle, of District Nurses Swab, GP gives Antibiotics. Swab. Same Again.
Over & Over Again.
For TWO MONTHS, aka 60 Days, and Counting…
I am BEYOND Worried Now.
But even more so, on top of that… I’m getting VERY Worried about how Nonchalant, unhurried, and … basically Disinterested in this situation the GPs are BEING…
Surely, an Antibiotic-Resistant bacterial infection should garner — or even require — slightly more, concern, disturbance and urgency to their mindset?
It’s Disturbing ME, that’s for sure…
Seriously... I FEEL SO REALLY... ILL.
Last time the District Nurse came to see me for the Swab, my temperature was 37.5°C… On 2x500g QDS daily Paracetamol…[!!]
To Be Honest — We REALLY DO NEED to ask for bloods to be taken next time... And Apparently, yes, IS US that NEEDS to ask... cos they’re being WAY too lackadaisical about this, haven’t come out to even see me and it’s been TWO months since it started....?
AND NOTHING’S WORKED...??? Shouldn’t there be some Alarm Bells Trilling By Now, at least? They haven’t even given me more than two different types of antibiotic pills, twice each, and one separate attempt at an ointment.
At THIS rate, I’m getting SEPSIS, or MRSA, OR BOTH... AND [QUITE Shockingly, I’m Sure…] I DON’T WANT TO.
Surely... They should have at least done bloods, right...?? I’m Horribly Shocked they haven’t. Disgusted, even.
HOW do they know it’s NOT turning into SEPSIS? HOW can they know, without even looking at the bloods? … Checking my Whites? Looking at the Full Blood Count and other Markers for this...??
I’d be shocked if I wasn’t immunocompromised in the way this is going — and keeps ON freaking going & going — like the fucking DUCACELL Bunny...
There’s a secondary infection in my knee, too. A scrape that ended up getting some infection somehow… and that infection started Oozing Nasty Puss. WEEKS Ago. Nothing is Stopping It… And the Antibiotics AREN’T even helping THAT one either. I just keep having to change the Hydrocolloid dressing on it.
Y’know... I presumed/hoped they would have done it at least after the 2nd one didn’t work, to see how the rest of me was faring — for Reasons WHY it actually WASN’T bloody working?
There’s zero sense of urgency or concern from them... And that REALLY confuses and angers me.
My Levels of Fear & Concern are skyrocketing, to be honest. Eight years ago, I was absolutely rotten sick with Septicaemia (and not one, but TWO, kinds of blood poisonings) and Sepsis. Six Weeks Straight of IV Antibiotics… four times a day. Every. Single. Day — until the very last one. And it took Two Years to make some kind of Recovery from it, but I never “bounced back”. I lost a lot, including the small ability to stand for three seconds to manage clothes or transfers. I ended up fully paralysed from the chest down, instead. I was rendered with more Post-External Malaise, more extensive Fatigue, finding using hands and fingers far more difficult… More. And that’s after I “Recovered”… That was what I was left with — Permanently.
I’m VERY much worse now, so I can’t exactly afford to lose anything more — and I’ve already lost FAR Too Much from going through what I’ve been forced to endure over the past six months…
To have gone through ALL that, though, to have to be faced with MORE ILLNESS in the form of a Post-Operative Infection that No One is actually Fixing…
This is Surely Absolutely Part of the NHS at its Very WORST… Indifferent, Apathetic, Unconcerned, Disinterested, Blasé… Without a clue regarding Urgency, Gravity, or Concern for what’s actually going on with me, right now.
IT’S. BEEN. TWO. GOD-DAMNED. MONTHS.
PRECISELY SIXTY DAYS [give or take one or two days for not knowing PRECISELY WHEN the infection actually STARTED for SURE].
You’d think, by now, they’d ben at the point of thinking “Well, Shit”… Right? But, it’s abundantly, absolutely clear that evidentially they’re not doing anything of the sort.
So…
... I‘m getting VERY Very Scared about it, now...
