Time Has No Meaning...

I thought it was BAD Before. That I knew what the Absolute Magnitude of Exhaustion was. I Had No Idea it could get THIS Bad — Where even the energy to…

Jul 21 • Lelibug Vaeda

A Me + ME/CFS... Letter & Essay (also aka - TL:DR!)

Getting More & More Ill. More Exhausted To The Point Of Collapse... From Nothing More Than Moving - Slightly. Symptoms I Never Had Before COVID & A MEGA…

Jul 21 • Lelibug Vaeda

June 2026

Taking The Heat...

These New Heatwaves are Bad For Everyone, yeh... But what I've been finding is basically NOTHING in the Media discussing how it affects those with…

Jun 29

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April 2026

Disability Somehow Makes Us The Sacrificial Lambs...

MPs take home nearly TEN TIMES what Disabled people get on Universal Credit... Yet, they claim WE are the ones draining the Taxpayer purse …

Apr 6 • Lelibug Vaeda

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March 2026

"Disabled" Shouldn't EVER Mean "Dismissed", "Dehumanised" or "Debased"...

The Ablest Rhetoric of the Government & Mass Media has been seeping BACK into Medical/Social Care to the shocking point where we are no longer People or…

Mar 16 • Lelibug Vaeda

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"Disabled" Shouldn't EVER Mean "Dismissed", "Dehumanised" or "Debased"...

Being Disabled and inevitably seen as “less" also shouldn’t mean that Medical, Mental Health, & Social Care “Professionals” are constantly, overly, and…

Mar 16 • Lelibug Vaeda

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December 2025

OVERLORDS vs MINIONS

NHS Services Should be a Partnership between Patient & Clinicians. But, Too Often the basic setup is "You Do As I Say" & "I Know Better Than You…

Dec 30, 2025 • Lelibug Vaeda

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It’s Yuletide — But That Tide Is DROWNING Me

And...WRECKED. EVEN. MORE. THAN. THAT. Between GP Surgery & Urology Dept of The Hospital, I honestly suspect I'm LUCKY to Not Be Dead, or at the very…

Dec 21, 2025 • Lelibug Vaeda

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November 2025

Infection Subjection & Urgency IGNORED, Once More...

One More Time NHS "professionals" have shown Zero Concern, Urgency, or Alarm about something that's actually Very Serious, in my life and in others…

Nov 23, 2025 • Lelibug Vaeda

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October 2025

Getting Worse Before Not Getting ANY Better

In an ideal world… being Disabled in some manner would mean extra understanding, support, respect, protection; Particularly within a Heathcare Setting….

Oct 8, 2025 • Lelibug Vaeda

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September 2025

Disabled & Vulnerable

Beyond Exhausted, Beyond Wrecked... and although Finally had the Surgery I've been waiting for - the question is, at what cost was the wait to me and my…

Sep 25, 2025 • Lelibug Vaeda

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August 2025

Sibling Hatred & Narcissistic Blindness

Can someone be So Self-Involved or Truly Narcissistic, they can ignore the fact you're struggling to even draw breath and Bed/Housebound from Severe…

Aug 17, 2025 • Lelibug Vaeda

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